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Percutaneous Glycerol Rhizotomy?? - mairondil

Savaaha d'Loren posting in mairondil
User: tn_support (posted by stripedpony)
Date: 2008-12-03 01:10
Subject: Percutaneous Glycerol Rhizotomy??
Security: Public
has anyone had any experience with this? The neuro consult today went in that direction instead of the Gamma knife... I really am not sure about this. I don't exactly like the thought if some of that glycerol ends up in my brain stem. And while the doc said he had performed over 100 with out complications he admitted its been so long since he did one that he didn't even know if he could get the right needles or the right glycerol.
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imafarmgirl
User: imafarmgirl
Date: 2008-12-04 13:07 (UTC)
Subject: (no subject)
We didn't even do all the scans before my MVD and a blood vessel was still found. I'd get a second opinion. My MVD did work for a year and a half. Many people show nothing on the scan and still have a compression.

Please if you have time join the TN e-mail support list. It's not very busy and you will get loads of information. When you reply to people it goes to them instead of the group unless you fix that which is irritating, but other than that it's a great list. Here is the info to join.

Send a message to:
LISTSERV@LISTSERV.UARK.EDU
and, in the text of your message (not
the subject line), write: SUBSCRIBE TN-L

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Savaaha d'Loren
User: stripedpony
Date: 2008-12-06 02:09 (UTC)
Subject: (no subject)
thanks Sarah I finally got that Email sent. I think at this point Im seriously considering a consult to get the Gamma.
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imafarmgirl
User: imafarmgirl
Date: 2008-12-06 02:32 (UTC)
Subject: (no subject)
Where do you live? Is there somewhere good you can go?
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Savaaha d'Loren
User: stripedpony
Date: 2008-12-06 06:36 (UTC)
Subject: (no subject)
Im in Mississippi.I can go to the university hospital in Jackson.
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